Our values are Integrity, Empowerment, Innovation, and Compassion.
Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker Muscular Dystrophy with the ultimate objective of finding a cure for the condition. Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls.
What is Duchenne?
Duchenne affects every muscle through multi-systems in the body including the pelvic girdle, legs, arms, neck, hands, through to the smooth muscle affecting swallowing, digestion and elimination. The heart, lungs and diaphragm are also muscles, and the deterioration of these organs leads to progressive and inevitable respiratory andheart failure.
There is no cure or effective treatments currently available in Australia to change the natural trajectory of Duchenne. Life expectancy is in the mid-20’s with young affected Australians passing away as young as 10 years of age from cardiac and respiratory failure.
Where do funds raised go?
Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aim to make a difference in the lives of all living with Duchenne and Becker Muscular Dystrophy across Australia.
Save Our Sons helps families afford essential quality-of-life enhancing equipment, not currently available under State or Federal Government funding schemes, including funds for:
- Top-up funding for standing function wheelchairs
- Cough-assist machines
- Portable ventilators
- Swim scooters, and
- Mobility scooters
Funds raised also go directly towards the provision of Nurses focusing on Duchenne and Becker muscular dystrophy in hospitals across Australia, the Australian Duchenne Registry, the Duchenne Network Australia, and research, studies and clinical trials which are of the utmost importance in finding a cure for Duchenne and Becker muscular dystrophy. Securing more clinical trials to be undertaken in Australia and for as many Australians as possible to participate in those clinical trials surrounded by their support networks is a key objective of Save Our Sons.
For more information go to www.saveoursons.org.au
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